Anyone out there have a congenital lymphedema? I do not know who wrote this law.?
I was wondering if anyone else in the world Congenital lymphedema as I've never met or spoken or heard of any other person having the disease. would be good to talk or talk with someone he did.
GREETINGS! Yes, there are many people who have congenital lymphedema, some refer to it as Milroy's disease, primary lymphedema, and you're not alone. I am the owner and Lymphland Lymphland.com International Lymphedema Online Support group. We have many members who are patients in primary lymphedema. I am a cross between primary and secondary. I am a cancer survivor, but since I developed lymphedema in so many places in my body, doctors are inclined to believe that I was born with the condition, but did not know until the illness and surgeries Set It Off. My group has an online chat room that is open every day of the week, we met to talk and we'll be in the Atlantic time chat tonight 9-11pm if you just want to drop, also known as Annette Mac, will host tonight. Please visit my website, http://www.lymphland.com Feel the button to join the support group on this page, also the top is the directory where you can find all sorts of issues with the chat room, just look at C for the cat. Hope to see you in the group and the cat! Nice to know! Vat
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