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Support Networks For Lymphedema Patients in the UK

By Peter Hodges

Information and help on Lymphedema was hardly forthcoming until the past few years. However, the numerous Lymphedema patients in UK now rely heavily on a large network of support groups that have been working in the field of Lymphedema. A person diagnosed with Lymphedema is often distressed and finds it difficult to deal with the fact that the ailment has no cure. Since he or she is not aware of other people suffering from a similar condition, there is feeling of isolation and a sense of confusion in dealing with the problem. The association with a support group eases the feeling of isolation because members share experiences and information with others in a similar situation.

The Lymphedema Support Network (LSN) was started in UK in 1991. A charitable organization, it aims to help out Lymphedema patients with guidance and support as well as increasing the awareness of this little known condition. The organization works to obtain better resources for treating Lymphedema in the United Kingdom. It also tries to connect with other health professionals who work in this field. The network of Lymphedema support groups all over Britain is endorsed by the LSN.

Since its commencement in 1991, the LSN has been providing information fact sheets to help the patients. The high level of information made available by LSN has encouraged healthcare professionals and doctors to use the information in clinics and hospitals to treat Lymphedema patients in UK. LSN is a patient-led organization and the members have a deep understanding of Lymphedema from the patient’s viewpoint. The self-help videos that have been created for patients are now used as teaching aids for healthcare professionals dealing with Lymphedema. The LSN produces a quarterly newsletter, has a website and offers telephone support for the patients. It campaigns for improvement in healthcare for Lymphedema patients and promotes the self-help support group in UK.

The British Lymphology Society (BLS) is an organization involved in Lymphedema management in Britain. The society is meant for the healthcare professionals who work with Lymphedema patients directly. It acts as a link to the Department of Health in UK and hopes to reassess the guidelines for the long term management of Lymphedema. BLS promotes the awareness of Lymphedema among the general public and the government departments to improve the healthcare for Lymphedema patients. It ensures that the public viewpoint in relation to healthcare reaches the relevant government department to bring about a change in the policies for health care measures. BLS also supports research in the area of Lymphedema.

An association with a Lymphedema support networks in UK ensures that the members receive information and newsletters on how to deal with Lymphedema. Relevant information that would be useful for the patient as regards issues like manual lymph drainage, coping with swellings and infection is offered to the members. There is interaction among members to share their knowledge and information with others and thus helps them to cope better with Lymphedema.

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